|
Consortium organisation name
|
Country
|
|
Institut National de la Santé et de la Recherche Médicale- INSERM
|
France
|
|
Institute
of Health Information and Statistics of the Czech republic- IHIS
|
Czech
Republic
|
| Federal Institute for Drugs and Medical Devices-Bfarm |
Germany
|
|
Consorcio
Centro de Investigacion Biomedica en Red MP- CIBER
|
Spain
|
|
Ministry
for Health, Government of Malta- MFH
|
Malta
|
|
Assistance Publique- Hopitaux de Paris- APHP
|
France
|
| Fundacion Para el fomento de la Investigation Sanitaria y biomedica de la Comunitat Valenciana -FISABIO |
Spain
|
|
Regione
del Veneto-Veneto Region
|
Italy
|
|
Department
of Public Health Iasi- Directia de Sanatate Publica Iasi (DSP IASI)
|
Romania
|
| EURORDIS- Rare Diseases Europe |
France
|
| Collaborating partners |
|
Maastricht University (on behalf of the EMRaDi project)
|
the Netherlands
|
|
HSE
|
Ireland
|
|
HL7
International Foundation
|
Belgium
|
|
Consejería de Salud. Región
de Murcia.
|
Spain
|
|
Servei
Català de la Salut (CatSalut) (in collaboration with a Rare Diseases Assessor
Group)
|
Spain
|
|
Departamento de Salud del Gobierno de Navarra (Regional Department of
Health of Navarre)
|
Spain
|
|
Dirección
General de Salud Pública de la Junta de Castilla y León
|
Spain
|
|
Departamento de Salud, Gobierno Vasco
(Health Department, Basque Government)
|
Spain
|
|
Institute of Mother and Child
|
Republic
of Moldova
|
Dirección General de Salud
Pública. Generalitat Valenciana
|
Spain
|
|
UMF-IASI
|
Romania
|
| MetabERN |
Germany
|
|
Heidelberg University Hospital Center for Child and Adolescent
Medicine, UKL-HD (ERKnet) –
|
Germany
|
|
Erasmus Medisch Centrum- EMC(CRANIO ERN)
|
the
Netherlands
|
|
Istituto Ortopedico Rizzoli – IOR(BOND-ERN)
|
Italy
|
|
Great Ormond Street Hospital for Children NHS Foundation Trust –
GOSH(EpiCARE)
|
London,
UK
|
|
Erasmus MC – Erasmus
Medisch Centrum (ERNICA)
|
the
Netherlands
|
|
Polikliniek
Endocrinologie (Endo-ERN)
|
the Netherlands
|
|
Azienda Ospedaliero
Universitaria Pisana – Ospedale S. Chiara (ReCONNECT)
|
Italy
|
